Embedding a new model of shared decision making in healthcare policy and practice

Our research identifies key barriers to shared decision making.
Shared decision making (SDM) empowers individuals to make decisions about their treatment options with the support of their clinician. It is a collaborative process which utilises the clinician's expertise, but acknowledges the preferences, values and circumstances of the patient. It is widely accepted and evidenced as the gold standard approach to making healthcare decisions. However, routine implementation in practice has been slow.

Our researchers have led a major research programme to identify the barriers to routine SDM implementation. As a result of their findings, various tools were developed to help embed this approach in routine healthcare settings.
These tools included a new ‘three-talk’ SDM model, healthcare professional skills training, and improved patient decision aids for use in clinical consultations, all of which are key to helping people make informed and value-based choices about healthcare that take their personal preferences into consideration.
Making Good Decisions in Collaboration (MAGIC)
The research project, a joint research programme between Cardiff University and Newcastle universities, was titled the Making Good Decisions in Collaboration (MAGIC) Programme. Key barriers to SDM implementation in various routine clinical settings were identified, and different forms of training and patient decision aids developed.
Our own research focused on developing a new SDM model for clinical practice. Concurrently, Newcastle University explored alternative ways to support SDM engagement and measurement within organisations.

The MAGIC programme research found that clinicians:
- believed that they already involved patients in decisions about their care
- often reported that patients did not want SDM
- lacked the right tools to implement SDM
- did not have time to focus on SDM due to other demands on time
The team also found that:
- patients often felt unable to participate in SDM due to lack of knowledge, or due to the perceived power imbalance in the clinician-patient relationship
- providing patients with decision aids during the consultation led to greater engagement than tools provided after consultations (such as information leaflets and website links)
- it was challenging to capture the difference that SDM made to patients
The identification of these areas kick-started the Cardiff University team to focus on how SDM implementation could be more successful.

Publishing our research is important, but what matters most is collaborating with our NHS colleagues to make sure that our research makes a difference and improves patient care. Working directly with the healthcare teams to make real changes and improve person-centred care has been extremely rewarding.
Impact
- SDM was applied to support more effective clinical decision-making and had a positive impact on interactions with patients and explanation of treatment options.
- Training of NHS and Public Health Wales healthcare professionals throughout Wales, using the Cardiff ‘three-talk' model to support improved SDM in their organisations.
- The creation of training packages that could be easily adapted for different settings for example, the embedding of SDM into clinical practice in the Musculoskeletal Physiotherapy service in Aneurin Bevan Health Board.
- Our research influenced new UK policies and international standards for the creation of patient decision aids in the US, Canada and Norway.
Publications
- Joseph-Williams, N. et al. 2017. Implementing shared decision making in the NHS: lessons from the MAGIC programme. British Medical Journal (BMJ) 357 j1744. (10.1136/bmj.j1744)
- Joseph-Williams, N. et al. 2014. Toward minimum standards for certifying patient decision aids: a modified Delphi consensus process. Medical Decision Making 34 (6), pp.699-710. (10.1177/0272989X13501721)
- Joseph-Williams, N. , Elwyn, G. and Edwards, A. 2014. Knowledge is not power for patients: a systematic review and thematic synthesis of patient-reported barriers and facilitators to shared decision making. Patient Education and Counseling 94 (3), pp.291-309. (10.1016/j.pec.2013.10.031)
- Lloyd, A. et al. 2013. Patchy "coherence": using normalization process theory to evaluate a multi-faceted shared decision making implementation program (MAGIC). Implementation Science : IS 8 (1) 102. (10.1186/1748-5908-8-102)
- Elwyn, G. et al. 2012. Shared decision making: a model for clinical practice. Journal of General Internal Medicine 27 (10), pp.1361-1367. (10.1007/s11606-012-2077-6)
- Elwyn, G. et al. 2006. International Patient Decision Aids Standards (IPDAS) Collaboration. Developing a quality criteria framework for patient decision aid: online international Delphi consensus process. British Medical Journal 333 (7565), pp.417-419. (10.1136/bmj.38926.629329.AE)