Measuring the impact of living with serious skin conditions

This is a global project to measure the wider impact of living with skin conditions from both experts’ and patients’ perspective.

This collaboration with international colleagues in Germany and Canada across dermatology and psychology will investigate how living with a serious skin condition impacts on health and well-being plus its social and economic impact.

The project will involve a range of data collecting methods including surveys, interviews and consensus-seeking approaches. The people involved will be expert dermatologists, psychologists, nurses, patient organisation leaders, health economists and patients living with a range of conditions.

We aim to develop a new general measure that measures what it intends to, does this reliably over time, across age groups and across countries. Alongside this general measure will be one that is applicable to specific skin conditions such as psoriasis, vitiligo, eczema and others.

Funding

This project is funded by the International Alliance of Dermatology Patient Organizations (IADPO).

Lead researcher