BBC Wales will broadcast a half-hour radio program based on our research examining 'Advance Decisions' ('Living Wills') and the particular challenges around serious acquired brain injury. Presented and co-produced by Jenny Kitzinger (Cardiff University), this program draws on our interview data with families, and our work with leading practitioners, to explore some of the complex practical and ethical issues around this topic.
In this one day seminar, funded by the Wellcome Trust, we seek to explore the notion of something being ‘proper medical treatment’; the medical exception discussed in R v Brown, R vBland and by the Law Commission in 1994. What renders an activity legitimate when otherwise it would not be? Contributors include legal academics, bioethicists, clinicians, regulators and policy-makers. Celia Kitzinger and Jenny Kitzinger will present a paper that explores how family members construct "proper medical treatment" for their relative and how conflicting views about whether certain medications and procedures (e.g. craniotomy, fMRI scanning, SMART testing, use of tilt tables, clinically assisted nutrition and hydration) do or do not constitute 'proper medical treatment' are constructed and negotiated.
“The Secret Court”: Lifting the Veil on the Court of Protection, MacDonald Hotel, Manchester
CoPPA is an association of practitioners and researchers concerned to protect and promote the efficiency of Courts in England and Wales in dealing with matters relating to the Court of Protection and to further and improve the knowledge of all persons involved and interested in the law and practice of relating to Court of Protection and Mental Health and Mental Capacity issues. Jenny Kitzinger and Celia Kitzinger will be giving an invited talk entitled: “Withholding/withdrawing life-sustaining treatments and the personal autonomy of people with chronic disorders of consciousness: Family perspectives”. Other speakers include Mr Justice Charles, Tim Spencer-Lane from the Law Commission, Yogi Amin, Head of Public Law at Irwin-Mitchell.
We will work concretely on formulating our Wellcome bid in conjunction with our practitioner colleagues, including Derick Wade, Consultant in Neurorehabilitation at the Oxford Centre for Enablement and Jan Lavrijsen, a physician at Radboud University Nijmegen Medical Centre specializing in complex and palliative care, and a member of the European Task Force on Disorders of Consciousness.
“This meeting will cover a range of different areas of controversies within Critical Care Medicine clinical practice. It is hoped that this meeting will enable attendees to participate in a discussion which may help shape future practice within the UK.”
The research of the York-Cardiff Chronic Disorders of Consciousness Research Centre will be represented at this conference by Jenny Kitzinger who will present a reflection on the views and experiences of patients' families as informed by our own research alongside a systematic review of all available evidence and consultations with families on the draft guidelines.